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MORE INFORMATION AND QUICK LINKS


"Knowing is not enough; we must apply. Willing is not enough; we must do."
Goethe

"Even if you are on the right track, you'll get run over if you just sit there."
Will Rogers

I don't mean to come across as militant, or a rah, rah cheerleader, (though I was one 100 years ago), but we must educate ourselves. I have been getting quite an education doing this research. With our knowledge, we can prod and educate our government, our doctors, the public, and most of all, our families and friends.

PLEASE PASS THE AWARENESS DAY PROJECT ACROSS CANADA

If you have more information on other provinces or find any made mistakes,
please bring them to my attention.Other sites may be listed in the Guest Book.
Some of this was done "under the influence of fibro-brain"





ONTARIO LINKS

A wonderful newsletter & many contacts, i.e. Support Groups & Doctors:

The Myalgic Encephalomyelitis Association of Ontario
1810 Avenue Rd., Suite 301
Toronto,
Ontario M5M 3Z2
Telephone:

1-877-632-6682
1-416-222-8820





This might be useful:

Ontario Human Rights Commission
180 Dundas Street West, 8th Floor
Toronto, Ontario
M7A 2R9
Telephone:

1-800-387-9080
E-Mail:
regional@ohrc.on.ca





Produced by National ME/FM Action Network:

Legal Research Package
Marj van de Sande
151 Arbour Ridge Circle NH,
Calgary, Alberta
T2G 3V9
Telephone / Fax:

1-403-547-8799
E-Mail:
vandesan@cadvision.com

An excellent package to give to your disability lawyer
$25.00 cheque payable to Marj van de Sande





Produced by National ME/FM Action Network:

An 100+ page booklet of important medical and legal, etc. articles
National ME/FM Action Network
3836 Carling Avenue
Nepean, Ontario
K2K 2Y6

$20.00 payable to National ME/FM Action Network





This clinic is relatively new. I was there for a 3 hour appointment. The staff is wonderful. It feels so safe. They don't judge or make you feel threatened at all.

The Environmental Health Clinic,
Women's College Hospital

Environmental Health Clinic
Women's College Hospital
Room 538, 5th Floor,
76 Grenville Street,
Toronto, Ontario
M5S 1B2
Telephone:
1-416-351-3764
1-800-417-7092
Fax:
1-416-323-6130

They are there to help.

    





This program is for anyone having high cost of prescription drugs, and your insurance covers only a % of the cost, or, if you have no insurance.

Trillium Drug Program
Ontario Drugs Program Branch
Trillium Plan
5700 Yonge Street, 15th Floor
North York, Ontario
M2M 4K5
Telephone:

1-800-575-5386
1-416-326-1558

You initially pay a deductible.





Your doctor is required to write a letter for Section 8

For the cost of medication beyond the list covered by Trillium Plan
Ontario Drugs Program Branch (Section 8)
5700 Yonge Street, 3rd Floor
North York, Ontario
M2M 4K5
Telephone:

1-416-327-8109





There is a Federal Special Access Program for products not available in Canada.

Federal Emergency Release Drug Program
Telephone:

1-613-941-2108

Your physician can, possibly, obtain medications for you.
Call Health and Welfare Canada for an application.





If your physician feels that you would benefit from medical services not available in Ontario

Out of Province and Canada Medical Care
Telephone:

1-800-268-4300
Collect:
1-416-327-4300

General Inquiry Number for Ministry of Health.





If the Medical Care you seek is not available in your area.

     Northern Ontario Travel Grant
Sudbury:
1-800-461-4406
Timmins:
1-800-461-9829
Thunder Bay:
1-800-465-5067
Sault Ste. Marie:
1-800-465-2215





Non-profit for Canadians in financial need for medical treatment outside their communities.

Mission Air Transportation Network
Telephone:

1-416-222-6335
E-mail:
missnair@interlog.com
Website:
http://www.interlog.com/~missnair

$25 processing fee and 2 to 3 weeks notice please.





I belong to this list, receive Canadian information and have made new friends.

Canadian Emailing List
Contact: Gerry Harris (a co-owner)
E-Mail:

gharris@pto.igs.net

Thank you,
  Gerry





A wonderful active organization.

National ME/FM Action Network Website
Website

http://www3.sympatico.ca/me-fm.action/


<1>GATEWAY GROCERIES ON LINE*** A perfect way to shop for groceries at supermarket prices.***They deliver. I have used them and recommend them whole-heartedly.

Website

http://www.grocerygateway.com/





The Nightingale Research Foundation Website
Website:

http://www.nightingale.ca/index.shtml





A handy number for us to have

College of Physicians and Surgeons
Intake (complaints):

1-416-961-1711





Ability online for youths with disabilities i.e. CFS

Sick Children's Hospital
Website:

http://www.ablelink.org
Telnet:
bbs.ablelink.org
Modem:
1-416-650-5411
Telephone:
1-416-650-6207





Lots of information and links.

Roger Burns Site
Website:

http://www.cfs-news.org/news.htm
Website:
http://www.cfs-new.org/intro.htm





A wonderful source of information and participation.

Mary Schweitzer's Information
Website:

http://home.netcom.com/~schweit2/home.html





She offers the "basics and beyond"- a very beautiful site

Marilyn Kerr RN Web Site
Website:

http://www.geocities.com/HotSprings/6028/





General ME/CFS Information
Website:

http://www.chronicfatigue.about.com





French Language

ME/CFS Information
Website:

http://www.multimania.com/sfcnet/index.html





An amazing organization, provides new and gently used equipment i.e. wheelchairs, to adults in financial need they also rent out equipment.

The Ontario March of Dimes
Counties of:

Bruce, Grey, Dufferin, Simcoe, Muskoka, Wellington, and Waterloo
Telephone:
1-519-579-5530

Counties of:

Middlesex, Oxford, Elgin, Kent, Lambton, Essex, Peel, and Huron
Telephone:
1-519-972-9802

Counties of:

Toronto, York, Durham, Victoria, Haliburton, Peterborough and northcumberland
Telephone:
1-905-773-7758 ext.218

Counties of:

Manitoulin, Perry Sound, Temishaming, Nipissing, Cochrane, Algoma, Thunder Bay, Rainy River, Nipissing, Cochrane, and Kenora
Telephone:
1-705-949-1945

Counties of:

Ottawa, Carleton, Renfrew, Stormant, Dundas, Glengarry, Frontenac, Leeds, Grenville, Lanard, and Hastings
Telephone:
1-613-932-3255

Regional Municipalities of:

Niagara, Haldimand, Norfold, Hamilton-Wentworth also
Counties of:
Brant and Halton
Telephone:
1-905-687-8984





For people with health disabilities who have difficulty qualifying for travel insurance

Travelability Program (The Ontario March of Dimes)
Telephone:

1-888-573-7251
Fax:
1-905-264-8331





Canadian E-Mail subscription.

CFS News
Website:

http://www.cfs-new.org/news.htm





Start an E-Mail list of your own
Website:

http://www.egroups.com





Good medical Search Engine.

Medical World Search
Website:

http://www.mwsearch.com





Health Guide to sites across Canada.

Healthway
Website:

http://www.healthyway.sympataico.ca





High on my list.

Health Care Information Resources
Website:

http://www-hsl.mcmaster.ca/tomflem/top.html

Hope and Help for Chronic Fatigue Syndrome

    





CDC case definitions.

Centers for Disease Control and Prevention
Website:

http://www.cdc.gov





A Guide to Information and Support/Medical
Website:

http://www.geocities.com/HotSprings/1505/guide.html





Get the latest news.

Health Finder
Website:

http://www.healthfinder.gov





A peer-reviewed Resource for Primary Care.
Physicians, Drugs, etc.

RX Med
Website:

http://www.rxmed.com/index.html





Billing Code for Primary Care Counseling
Billing Code K005

Please advise your physcian.
Apparently this code is not well know and will assist your physician in being financially compensated for your appointments.






Affordable administrative/legal help.

Cameron & Associates Ltd.
401-200 Elgin Street,
Ottawa,
K2P 1L5
Telephone:

1-613-237-2296
1-877-251-4608 *Toll Free*
Fax:
1-613-232-7763
Website:
http://home.istar.ca/~gcamcal/cmaweb.htm





A UK site, very interesting and informative.

Axford's Abode
Website:

http://freespace.virgin.net/david.axford/index2.htm





Health Watch at CBS
Website:

http://www.medscape.com





Physician reviewed information
Website:

http://www.mdchoice.com





Responsible Health Information
Website:

http://www.ncahf.org





A must to help protect yourself.

Quackwatch
Website:

http://www.quackwatch.com





More Health Information
Website:

http://www.achoo.com





Library of Medicene
Website:


http://www.nlm.nih.gov/





Funded by Health Canada
Website:

http://www.canadian-health-network.ca/





A Health Search Engine
Website:

http://www.yahoo.com/Health/Medicine/journals





Home to John's Hopkins Health Information
Website:

http://www.intellihealth.com





The Mayo Clinic
Website:

http://www.mayohealth.org





A helping hand for CFS/FMS people grappling with Worker's Comp. and
Assured Income for the Severely Handicapped (AISH)
It also provides support groups and distress calls.

The FM First Step and Beyond Society of Canada
Telephone:

1-403-255-9536





Canadian Infectious Diseases Society
Website:

http://cids.medical.org/





Arthritis Canada Website
Website:

http://www.arthritis.ca/new.html





Dedicated to providing support to people in chronic pain and
gives them assistance in living their lives to the fullest.

North American Chronic Pain Association of Canada
Website:

http://www3.sympatico.ca/nacpac/





Health Canada Online
Website:

http://www.hc-sc.gc.ca/





Canadian Institute for Health Information
Website:

http://www.cihi.ca/






Canadian Medical Association Online
Website:

http://www.cma.ca/





A very informative site.

ME & FM Manual
Website:

http://www.geocities.com/CapitolHill/1544/





The Canadian Human Rights Commission
Place de Ville, Tower A.
320 Queen Street, 13th Floor
Ottawa, Ontario
K1A 1E1
Telephone:

1-800-387-9080
1-6130-995-1151
Website:
http://www.chrc.ca/





Committed to reducing the human, social and economic cost of disability to workers,
employers, and society through education.

National Institute of Disability Management and Research
3699 Roger Street, Port
Alverni, B.C.
Telephone:

1-250-724-4344/8745
Fax:
1-250-724-8776
E-Mail:
burns@nic.bc.ca
Website:
http://www.nidmar.ca/





Eastern Canadian Office
PO Box 8803, Station T
Ottawa,
K1G 3J1
Telephone:

1-613-260-295
Fax:
1-613-260-2954
E-Mail:
jmuckle.nidmar@sympatico.ca





The Canadian Center on Disability Studies
Website:

http://www.escape.ca/~ccds/index.html





Not a job placement service, but an international toll-free consulting service that
provides info. about jobs ,accommodations and employability of people with disabilities.

The Job Accommodation Network Canada (JANCana)
Website:

http://janweb.icdi.wvu.edu/english/homecan.htm





This is the Active Living Alliance for Canadians with a Disability
-Ceci est de l'Alliance de vie active pour les Canadiennes ayant un handicap
a partnership of 14 National Associations whose common goal is to facilitate active living
opportunities for Canadians with a disability.

Active Living Alliance
1101 promenade Prince of Wales Drive, Suite 230,
Ottawa,
K2C 3W7
Telephone:

1-613-723-8710
1-800-771-0663 *TOLL FREE*
Facsimile:
1-613-723-1060
Website:
http://www.ala.ca/





Accessible Transportation Directorate
15 Eddy Street, Hull
Quebec
K1A O9O
Telephone:

1-800-883-1813 *Toll Free*
Website:
http://www.cta-otc.gc.ca/





Arch: A Legal Resource Centre for Persons with Disabilities
40 Orchad View Boulevard, Suite 255,
Toronto,
M4R 1B9
Telephone:

1-416-482-8255
Website:
http://www.indie.ca/arch





Association for the Neurologically Disabled of Canada
59 Clement Road,
Etobicoke
M9R 1Y5
Toll free:

1-800-561-1497 *Toll Free*
Website:
http://www.and.ca/





Canadian Association of Independent Living Centres
350 Sparks Street, Suite 1004,
Ottawa
K1R 7S8
Telephone:

1-613-563-2581
Fax:
1-613-235-4497
Website:
http://www.indie.ca/cailc/english/index.html





Canadian Clearinghouse on Disability Issues
c/o Office of Disability Issues, Human Resources Development
25 Eddy Street, Suite 100
Hull, Quebed,
K1A 0M5
Telephone:

1-800-665-9017 *Toll Free*





Canadian Council on Rehabilitation and Work
20 King Street West, 9th Floor
Toronto,
M5H 1C4
Telephone:

1-416-974-5575
Fax:
1-416-974-5577





A comprehensive resource for persons with diabilities worldwide! A directory of disability on the net.

The Integrated Network of Disability Information and Education
Website:

http://indie.ca/browse.cfm?Mode=Gfx&Language=English&SelectCat=84





Students with disability grants.

Canada Student Loans
Website:

http://www.hrdcdrhc.gc.ca/hrdc/hrib/learnlit/ops/cslp/engraph/y232073.html #100





A one stop resource for students from around the world studying to support and work for individuals with disabilities.

Disability Information for Students and Professionals
Website:

http://www.abilityinfo.com/





BRITISH COLUMBIA LINKS

To support British Columbians with disabilities.

The Strategy for Coordination Disability Issues (The Strategy)
Website:

http://indie.ca/strategy/





Information, links, and newsletter.

ME Victoria Assn.
Website:

http://www.geog.uvic.ca/mevic/





A much needed new site soon to be completed.

**** NEW *** GRAND OPENING **** British Columbia MEBC
Website:

http://www.mefm.bc.caMEBC@mefm.bc.ca





CFIDS/ME/FMS Information and Resources
Website:

http://victoria.tc.ca/~wo286/





ALBERTA LINKS

The mission of ACED is to support and promote entrepreneurial employment
opportunities by and on behalf of persons with disabilities.

Alberta Centre on Entrepreneurship and Disabilities Home Page
Website:

http://www.acs.ucalgary.ca/~aced/





Actively supports and promotes the rights and freedom of those with disabilities.

Alberta Committee of Citizens with Disabilities
Website:

http://indie.ca/accd/index.htm





Provides services and assist in obtaining employment of persons with disabilities.

Chrysalis
Website:

http://www.chrysalis.ab.ca/

Chrysalis
13325 St. Albert Trail,
Edmonton, Alberta
T5L 4R3
Telephone:

1-780-454-9656
Fax:
1-780-451-0168
E-Mail:
info@chrysalis.ab.ca

Chrysalis
#7,6020-1A Street S.W.
Calgary, Alberta
T2H 0G3
Telephone:

1-403-258-1501
Fax:
1-403-258-1577
E-Mail:
info@chrysalis.ab.ca





MANITOBA LINKS

To promote full participation and equality of people with disabilities.

Society for Manitobans with Disabilities
Website:

http://www.smd-services.com/4/index.htm





SASKATCHEWAN LINKS

A Wonderful, Feel-good, Informative Site
Website: Fibrohugs


QUEBEC LINKS

orgnisme du gouvernement du Auebec qui veille a la coordination
des services dispenses aux personnes handicapees.

Office des personnes handicpees du Quebec
Website:

http://www.ophq.gouv.qc.ca/





Beautifully presented and full of information.

Doug Lobel's site
Website:

http://home.istar.ca/~dlobel/indes.htm





A WONDERFUL MONTREAL FIBROMYALIA SITE

FIBROMYALGIE ET VOUS/FIBROMYALGIA AND YOU
Website:

http://members.tripod.com/invisdisease/index.htm






OTHERS LINKS

Environmental Illness Society of Canada
La societe canadienne pour les sensibilities environment

Website:

http://www.eisc.ca/EI-overview.htm





Co-Cure
focus on CFS and FM Website:

http://www.co-cure.org/





CFIDS Association of America
Website:

http://www.cfids.org/





A wonderful site, full of information and warmth.

Sue Boettcher
Website:

http://wwcoco.com/cfids




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